PSP Canada is the national patient advocacy organization for progressive supranuclear palsy in Canada. The organization supports Canadian patients and families affected by PSP, promotes research, and works to improve care and awareness of the condition across the country.
¶ Mission and Activities
¶ Patient and Family Support
PSP Canada provides essential support services:
- National support network: Connecting PSP patients and families across Canadian provinces
- Information resources: English and French materials about PSP management and care
- Regional meetings: Support group gatherings held across Canada
- Caregiver resources: Specialized guidance for those caring for people with PSP
Canadian researchers have made significant contributions to PSP science. PSP Canada supports this research through:
- Research grants: Funding for Canadian scientists studying PSP mechanisms and treatment
- Clinical trial support: Facilitating Canadian participation in international trials
- Fellowship awards: Supporting training for early-career researchers in PSP
- Travel funding: Enabling Canadian researchers to present at international conferences
PSP Canada helps patients navigate the Canadian healthcare system:
- Specialist referrals: Connecting patients with movement disorder neurologists
- Care pathway guidance: Information about accessing specialized services
- Provincial resources: Tailored information for different provincial healthcare systems
Canada has several world-class research centers studying PSP:
- McGill University, Montreal — Movement Disorder Unit with extensive PSP expertise
- University of Toronto — Sunnybrook Health Sciences Centre with tau research programs
- University of British Columbia — Neurodegeneration research in western Canada
- University of Calgary — Hotchkiss Brain Institute, PSP and atypical parkinsonism research
Canada actively participates in international PSP clinical trials:
- McGill University Health Centre, Montreal — Major site for Phase 2 and 3 trials
- Toronto Western Hospital — Movement disorder research and clinical trials
- UBC Hospital, Vancouver — Western Canada clinical trial site
- University of Calgary, Hotchkiss Brain Institute — Early-phase studies
PSP Canada collaborates with:
- CurePSP — International parent organization
- Parkinson Canada — Shared advocacy and awareness efforts
- Canadian Consortium for Neurodegeneration in Aging (CCNA) — National research network
- Health Canada — Regulatory engagement for new therapies
PSP Canada operates as part of the CurePSP international network, providing access to global resources, research funding opportunities, and the international PSP research community.
- PSP Canada
- CurePSP International Network
- Parkinson Canada